Project Publications (most recent first)


Henderson, Gail E.,
Larry R. Churchill, Arlene M. Davis, Michele M. Easter, Christine Grady, Steven Joffe, Nancy Kass, Nancy M. P. King, Charles W. Lidz, Franklin G. Miller, Daniel K. Nelson, Jeffrey Peppercorn, Barbra Bluestone Rothschile, Pamela Sankar, Benjamin S. Wilfond, Catherine R. Zimmer, "Clinical Trials and Medical Care: Defining the Therapeutic Misconception." (2007) PLoS Medicine, vol. 4, no. 11: e324, 1735-1738.
Full-text (pdf)

Easter, Michele M., Gail E. Henderson, Arlene M. Davis, Larry R. Churchill, Nancy M. P. King, "The Many Meanings of Care in Clinical Research." (2006) Sociology of Health and Illness, vol. 28, no. 6: 695-712; [also published as part of an edited volume:  (2007) The View From Here:  Social Science and Bioethics, edited by Raymond DeVries, Leigh Turner, Kristina Orfali, and Charles Bosk (Oxford, UK: Blackwell Publishing Ltd.)].
Only available at www.blackwell-synergy.com

Henderson, Gail E., Michele M. Easter, Catherine R. Zimmer, Nancy M. P. King, Arlene M. Davis, Barbra Bluestone Rothschild, Larry R. Churchill, Benjamin S. Wilfond, Daniel K. Nelson, "Therapeutic Misconception in Early Phase Gene Transfer Trials." Social Science & Medicine, vol. 62, no. 1 (January 2006): 239-253. Epub 2005 Jul 5.  Posted on this webpage with permission of Elsevier.  May not be distributed or reproduced without their express written consent.
Full-text (pdf)

King, Nancy M. P., Gail E. Henderson, Larry R. Churchill, Arlene M. Davis, Sara Chandros Hull, Daniel K. Nelson, P. Christy Parham-Vetter, Barbra Bluestone Rothschild, Michele M. Easter, Benjamin S. Wilfond, "Consent Forms and the Therapeutic Misconception: The Example of Gene Transfer Research."  IRB: Ethics and Human Research, vol. 27, no. 1 (2005): 1-8. 
Posted on this webpage with permission of the Hastings Center.  May not be distributed or reproduced without their express written consent.
Full-text (pdf) 

Henderson, Gail E., Arlene M. Davis, Nancy M. P. King, "Vulnerability to Influence - A Two-Way Street."  American Journal of Bioethics, vol. 4, no. 3 (Summer, 2004): 50-51. Copyright 2004 From American Journal of Bioethics by Henderson, Davis, and King.  Reproduced by permission of Taylor & Francis Group, LLC., http://www.taylorandfrancis.com
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Henderson, Gail E., Arlene M. Davis, Nancy M. P. King, Michele M. Easter, Catherine R. Zimmer, Barbra Bluestone Rothschild, Benjamin S. Wilfond, Daniel K. Nelson, Larry R. Churchill, "Uncertain Benefit:  Investigators' Views and Communications in Early Phase Gene Transfer Trials." Molecular Therapy, vol. 10, no. 2 (August, 2004): 225-231.  
Posted on this webpage with permission of Molecular Therapy.  May not be distributed or reproduced without their express written consent.
Full-text (pdf)

Easter, Michele M., Arlene M. Davis, Gail E. Henderson, "Confidentiality:  More than a Linkage File and a Locked Drawer." IRB: Ethics and Human Research, vol. 26, no. 2 (2004): 13-17.  Posted on this webpage with permission of the Hastings Center.  May not be distributed or reproduced without their express written consent.
Full-text (pdf)


Churchill, Larry R., Daniel K. Nelson, Gail E. Henderson, Nancy M. P. King, Arlene M. Davis, Erin E. Leahey, Benjamin S. Wilfond, "Assessing Benefits in Clinical Research:  Why Diversity in Benefit Assessment Can Be Risky." IRB: Ethics and Human Research, vol. 25, no. 3 (2003): 1-8.  Posted on this webpage with permission of the Hastings Center.   May not be distributed or reproduced without their express written consent.
Full-text (pdf)

King, Nancy M. P. "RAC Oversight of Gene Transfer Research: A Model Worth Extending?"  Journal of Law, Medicine & Ethics, vol. 30, no. 3 (2002): 381-389.  Posted on this webpage with permission of the American Society of Law, Medicine & Ethics.  May not be distributed or reproduced without their express written consent.
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Davis, Arlene M., Sara Chandros Hull, Christine Grady, Benjamin S. Wilfond, and Gail E. Henderson, "The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection." Journal of Law, Medicine & Ethics, vol. 30, no. 3 (Fall 2002):  411-419.  Posted on this webpage with permission of the American Society of Law, Medicine & Ethics.  May not be distributed or reproduced without their express written consent.
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Henderson, Gail E. and Nancy M. P. King, "Perceived Benefits of Participation in Gene Transfer Research." HemAware, vol. 7, no. 5 (2002):  73-75.  Posted on this webpage with permission of the National Hemophilia Foundation and Hemaware. May not be distributed or reproduced without their express written consent.
Full-text (pdf)

Churchill, Larry R. "Narrative Ethics, Gene Stories and the Hermeneutics of Consent Forms," in Stories Matter: The Role of Narrative in Medical Ethics, edited by Rita Charon and Martha Montello, (New York: Routledge, 2002): 183-195.

Henderson, Gail E. and Nancy M. P. King, "Studying Benefit in Gene Transfer Research."  IRB: Ethics and Human Research, vol. 23, no. 2 (2001): 13-15.  Posted on this webpage with permission of the Hastings Center.   May not be distributed or reproduced without their express written consent.
Full-text (pdf)